Why is it important for rare disease patients to seek inclusion in political manifestos
Rare disease patients seek inclusion in BJP’s manifesto for funding
- Increased Awareness: Inclusion in political manifestos can enhance awareness about rare diseases among policymakers and the general public.
- Resource Allocation: By being part of political manifestos, rare disease patients can advocate for dedicated funding and resources for research, treatment, and support services.
- Lobbying Power: Inclusion in manifestos gives rare disease patients a platform to lobby for policy changes, access to affordable treatments, and improved healthcare services.
- Prioritization: Being included in political manifestos can help prioritize rare diseases on the government's agenda, leading to improved healthcare infrastructure and access to specialized care.
- Empowerment: Seeking inclusion in manifestos empowers rare disease patients to have a voice in shaping policies that directly impact their lives.
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a year ago