Why did Rare disease patients and advocacy groups appeal to PM Modi for sustainable funding

Rare disease patients and advocacy groups appeal to PM Modi for sustainable funding for treatment to address financial challenges in accessing specialized care.
  • Rare disease patients often face financial challenges in accessing specialized care due to the high cost of treatments and limited availability of resources.
  • Advocacy groups highlighted the need for sustainable funding to ensure consistent support for treatment and management of rare diseases.
  • Appealing to PM Modi for sustainable funding can help in developing a comprehensive strategy to address the healthcare needs of rare disease patients.
  • Establishing dedicated funding for rare diseases can enable patients to access treatment options that might otherwise be financially out of reach.
  • By prioritizing sustainable funding, the government can demonstrate its commitment to promoting equitable access to healthcare for all, including rare disease patients.
Answered 3 months ago
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